the joys of being a woman: dealing with endometriosis

1 September 2010

So last month I was admitted to the hospital.  A lot of pain, getting poked and prodded, more pain….  Since then I’ve had two follow up visits to my new OBGYN.  And then two days ago I found myself back in the ER.

All for the joys of being a woman.

Though we won’t know without surgery, that 2-centimeter abscess they found near my ovary is caused by endometriosis.  That fleshy lining that’s supposed to be on the inside of my uterus, well, some of that isn’t.  The endometrium formed that abscess.  And since I’m not pregnant and it cannot leave my body, it’s become irritated.  Thus the “I don’t want to be conscious” pain.

Endometriosis isn’t uncommon.  Some people don’t even have any pain (lucky bastards).  But it can cause cysts and scar tissues, which could lead to infertility problems.  Surgery is an option.  It’ll remove the abscess, which should lessen my pain quite a bit.  Birth control pills will also help.  Estrogen can make this problem worse — which means until menopause/both ovaries are removed, I could still have issues.

Because I’m currently uninsured, surgery isn’t really our first choice.  Right now it’s all about pain management.  Which means for a week or so every month I’m going to have to rely on strong pain killers to function.   I’m also on birth control.  Free samples of birth control.  My doctor has been really great about not ordering more tests than necessary, same with prescriptions.  (Each visit to the doctor is $150.  Each ultrasound is over $800, of that $300 is due that day.  Even with the “uninsured discount”, the bill for my 4-day stay is still scary.)

Having endo doesn’t necessarily scare me.  But it’s an added stress.  And the fact that his pain isn’t really going to go away on it’s own any time soon… that this is basically just a countdown until the next episode of pain… Well, it’s hard.  Beyond the medical treatment, I’m trying to establish an endo support group to help get me through this.

I’m so tremendously grateful for those who’ve helped me thus far.  From my family, friends, and even medical staff (my night nurse from my first visit, and especially my ER team from this week — all super, caring people)… I’ll get through this.  Slowly and surely, I’ll get through this.

  • almost all the women in my family have had this condition, including my mom. I know I will probably get it too…

    It’s not fun but they all survivied. My mom actually takes this tea and since then, her symptoms have decreased and her condition has gotten a lot better, even the doctors were impressed. I know it sounds looney but considering you don’t have insurance, it might be worth a try? I’ll find out what the tea is called and let you know…

    • Erini

      fingers crossed that it’ll skip over you! there’s still a chance that this might not be endo, but until the doctor can find otherwise, that’s what we (doctor included) are going with. .. If you do end up developing endo or something similar, at least it’s good that you’ll have a support group in your family.

      I’d been dealing with the pain for a while — in college I was on birth control, which helped a lot… but this past year I’ve been off. And then the pain got worse, and unimaginably worse. Two days ago I found an online support group. It’s been incredible. Even if it’s not endo, these women are still here for me. It’s giving me hope.

      And yeah sure! I’d love to know more about this tea.

Previous post:

Next post: